The General Data Protection Reform (GDPR) entered into the trilogue phase in June with the aim of concluding discussions at the end of 2015 or soon thereafter. A new EPHA progress report describes the challenges of the GDPR experienced so far and confirms the crucial role of data for health research and science purposes.
In 2012, following the release of the European Commission’s proposal for a draft regulation (setting out a general EU framework for data protection) and a draft (...)
MEP Cristian-Silviu Buşoi (EPP, RO) will launch the ’MEP Friends of the Liver Group’. The event is organised in collaboration with the European Association for the Study of the Liver (EASL).
27 May 2015, 13.00 – 15.00 | Venue: The European Parliament (Brussels) | JÓZSEF ANTALL (JAN), Room 6Q1.
REGISTER HERE (Deadline: Wednesday, 20 May 2015)
MEP Friends of the Liver Interest Group:
Dr Cristian-Silviu Buşoi, the European Association (...)
On 10 December 2014, in an event hosted by MEP Cristian Buşoi (EPP, RO) in the European Parliament, the European Association for the Study of the Liver (EASL) launched the ‘Research Roadmap for Liver Disease (HEPAMAP) - Case study for chronic diseases & research’. The HEPAMAP stresses the need for further research on liver disease and calls on policy makers to step up their efforts to tackle the disease and its links with lifestyle and other diseases, such as (...)
EPHA responded to the European Commission consultation on science in transition, emphasizing that epidemiological research should be an important component of the EU’s Horizon 2020 research programme.
The primary focus of health research should be to improve public health and to reduce health inequalities. This includes research on population level interventions: improving the social and environmental determinants of health, understanding health behaviours, promoting continuity of (...)
Brussels, 10 December 2014 – Today, in an event hosted by MEP Cristian Buşoi (EPP, RO) in the European Parliament, the European Association for the Study of the Liver (EASL) (1) launched the ‘Research Roadmap for Liver Disease (HEPAMAP) - Case study for chronic diseases & research’ (2). The HEPAMAP stresses the need for further research on liver disease and calls on policy makers to step up their efforts to tackle the disease and its links with lifestyle and other (...)
A new European Data in Health Research Alliance was launched in early December. This campaign, supported by a number of health organisations active across Europe and representing research, patient and public health concerns, was set up to demonstrate in the most tangible way that personal data in research is vital because it saves lives.
The Alliance was established by Cancer Research UK, the Medical Sciences Committee of Science Europe, European Patients’ Forum, the Federation of (...)
Carlos Moedas (age 44) studied engineering at Lisbon University, Portugal and an MBA at Harvard University, USA. He worked for Goldman Sachs and EuroHypo investment bank before returning to Portugal in 2004 to join a property consulting company, and established his own property investment company in 2008. He led negotiations for the Social Democratic Party (PSD) for Portugal’s 2011 State Budget. He was elected as an MP in the same year, and leading implementation of the (...)
The fifth international influenza conference organised by EPHA member the European Scientific Working Group on Influenza (ESWI) took place in Riga on 14-17 September. A number of plenary and ’science/policy interface’ sessions examined the issue of low vaccination uptake in many Member States, as well as other issues related to pandemic preparedness and communication aspects of influenza-related health threats.
In the opening plenary, ’Why should influenza be a public (...)
Vaccines and Immunization
On 15 December 2011, the European Food Safety Authority (EFSA) Management Board adopted its Authority’s Policy on independence and scientific decision-making processes. A few months later EFSA’s Executive Director signed off a set of implementing rules on Declarations of Interests (DoIs). These rules regulate the way EFSA should process DoIs and prevent the occurrence of conflicts of interests.
The current system of declarations of interests and their subsequent (...)
Active Citizenship Network (ACN) decided to dedicate the 8th celebration of European Patients’ Rights Day in 2014 to "the role of citizens’ organisations in the empowerment of patients with chronic diseases." On 12 May, speakers examined the different chronic disease networks (e.g. cancer, diabetes, chronic obstructive pulmonary disease(COPD)) and their impacts on political decision making. On 13 May, EPHA participated in the panel discussion on how research policy can respond (...)