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The parliamentary group Gauche Unitaire Européene/North Green Left (GUE/NGL) hosted a Public hearing entitled "Neglected Diseases - Too poor to be treated" at the European Parliament on 8 February 2006.
The event brought together EU officials, scientific researchers, international organisations, NGOs, pharmaceutical companies and consultants.
The patron of the hearing, Umberto Guidoni MEP (GUE - IT), pointed out during his opening remarks, the need to think about changing the paradigms on (...)
**Latest update with the Council’s political agreement **. This article will be regularly updated by the EPHA Secretariat. Please feel free to inform the EPHA Secretariat of any developments not included here.
EPHA lobbying activities
At EPHA Extraordinary General Assembly (EGA) in December 2005, it was decided that the Secretariat would send to members of the European Parliament suggestions for amendments to the Commission text on the Seventh Research Framework Programme (FP7) so as (...)
*This article has been updated with information about the outcome of the project.*
The King Baudouin Foundation successfully led an EU-funded project called "Meeting of Minds" which aimed to foster greater involvement of citizens in defining priorities for brain research.
Run by 12 different organisations, the 2-year pilot project "Meeting of Minds" gave the opportunity to ordinary citizens from 9 EU Member States to discuss the impact of brain science on their daily life and express (...)
Following the publication by the European Commission of its proposal for the Seventh Research Framework Programme (FP7) (2007-2013) and the recent two FP6 calls for proposal targeting civil society, the role of civil society organisations must be significantly strenghtened in research.
Although there are a lot of concerns about the funding distribution in FP7, especially with regard to health, the other face of the debate focuses on the "war of evidence". How is defined sound and (...)
**Updated: the resolution will be discussed at the World Health Assembly in May 2006** On November 16 2005, the Republic of Kenya asked the World Health Organisation (WHO) to discuss a proposed resolution on a "Global Framework on Essential Health Research and Development" at the 23-28 January meeting of the WHO’s Executive Board.
The resolution is a really strategic and important opportunity to get support for a new global framework for health Research & Development which (...)
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Recently, the European Commission published two calls for proposals in the area of Science and Society under the Sixth Framework Programme.
The objective of the call is to contribute to universities’ mission of sharing knowledge outside the academic sphere. It mainly targets local civil society, universities and organisations involved in the training of students.
The call requires the use of specific support actions (SSA) and coordination actions (CA). Participants (...)
The European AIDS Treatment Group (EATG), an EPHA member organisation, issued their position paper on clinical research and drug users in order to urge key stakeholders to include drug users in the clinical trials.
Despite the high prevalence of HIV/AIDS within the injecting drug user population, EATG points out that drug users are excluded from clinical trials which raise concerns regarding the relevance of future treatments for this high-risk population.
EATG notes that health care (...)
EPHA Member, the European Federation of Allergy and Airways Diseases Patients’ Association (EFA) launched the results of the survey "Fighting for Breath: a European patient perspective on severe asthma" at the European Respiratory Society (ERS) Congress in September 2005.
Up until now, no pan-European survey by patients for patients has reported the real life experiences of what people living with severe asthma undergo every day. According to the report, "millions of people across (...)
The first results of a three-year project aimed to evaluate the links between reported healthcare expenditures and the use of medical services were presented by the European Network of Economic Policy Research Institutes (ENEPRI) and the Center for European Policy Studies (CEPS).
Entitled AHEAD (Ageing, Health Status and Determinants of Health Expenditure), the project’s main objectives are:
to assess factors that trigger health spending in the EU, with a particular focus on (...)