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What role for civil society in research?

Following the publication by the European Commission of its proposal for the Seventh Research Framework Programme (FP7) (2007-2013) and the recent two FP6 calls for proposal targeting civil society, the role of civil society organisations must be significantly strenghtened in research. Although there are a lot of concerns about the funding distribution in FP7, especially with regard to health, the other face of the debate focuses on the "war of evidence". How is defined sound and (...)
Also about: Civil Society

UPDATED - Call for support: WHO draft resolution on health Research & Development

**Updated: the resolution will be discussed at the World Health Assembly in May 2006** On November 16 2005, the Republic of Kenya asked the World Health Organisation (WHO) to discuss a proposed resolution on a "Global Framework on Essential Health Research and Development" at the 23-28 January meeting of the WHO’s Executive Board. The resolution is a really strategic and important opportunity to get support for a new global framework for health Research & Development which (...)

World Cancer Research Fund International (WCRF)

Contact details Mrs Felicity PORRITT Policy and Outreach Manager 19 Harley Street, First Floor UK-W1G 9QJ LONDON UNITED KINGDOM Phone +44 207 3434266 Fax +44 207 3434220 Email contact f.porritt@wcrf.org Website http://www.wcrf.org

Research: New Calls for proposal for civil society

Recently, the European Commission published two calls for proposals in the area of Science and Society under the Sixth Framework Programme. Science Shops The objective of the call is to contribute to universities’ mission of sharing knowledge outside the academic sphere. It mainly targets local civil society, universities and organisations involved in the training of students. The call requires the use of specific support actions (SSA) and coordination actions (CA). Participants (...)
Also about: Civil Society

EATG position paper on HIV/AIDS clinical trials and drug users

The European AIDS Treatment Group (EATG), an EPHA member organisation, issued their position paper on clinical research and drug users in order to urge key stakeholders to include drug users in the clinical trials. Despite the high prevalence of HIV/AIDS within the injecting drug user population, EATG points out that drug users are excluded from clinical trials which raise concerns regarding the relevance of future treatments for this high-risk population. EATG notes that health care (...)

Fighting for Breath - a report on living with severe asthma

EPHA Member, the European Federation of Allergy and Airways Diseases Patients’ Association (EFA) launched the results of the survey "Fighting for Breath: a European patient perspective on severe asthma" at the European Respiratory Society (ERS) Congress in September 2005. Up until now, no pan-European survey by patients for patients has reported the real life experiences of what people living with severe asthma undergo every day. According to the report, "millions of people across (...)

Evaluating healthcare expenditures : first results of the AHEAD Project

The first results of a three-year project aimed to evaluate the links between reported healthcare expenditures and the use of medical services were presented by the European Network of Economic Policy Research Institutes (ENEPRI) and the Center for European Policy Studies (CEPS). Entitled AHEAD (Ageing, Health Status and Determinants of Health Expenditure), the project’s main objectives are: to assess factors that trigger health spending in the EU, with a particular focus on (...)

Consumers need a more complete and accessible nutritional information

The European Consumers’ Organisation (BEUC) conducted a survey on European consumers’ perception of foodstuffs labelling, revealing the effectiveness of nutritional claims in attracting consumers’ attention and influencing their purchase. BEUC’s study attempts to evaluate the different factors that influence a consumer when buying foodstuff. The interest in nutrition, the sources of information, the nutritional knowledge, understanding and perception and (...)

FP7 : MEPs targeted to increase funding for rheumatism

Sponsored by the Member of the Europea Parliament (MEP) Ursula Stenzel (EPP- AU), EULAR - the European League Against Rheumatism - organised a conference in the European Parliament. They asked MEPs to consider rheumatism as a major disease in the future FP7, which will allow rheumatic disease to benefit from a special budget line. After a video message from the Commissioner for Research, Janez Potocnik, 8 speakers (including 2 speakers from pharmaceutical companies) repeated the need to (...)
Also about: Chronic Diseases

European Parliament backs directive to increase R&D on pediatric medicines

This article has been updated with the Council’s position and the second reading from the European Parliament. The European Parliament voted on 7 September in favour of a European Commission Directive to guarantee that medicines administered to children are actually suitable for them. An overwhelming majority of MEPs supported this way the stimulation of research into development of paediatric medicines in Europe. The Parliament’s decision will now go to the Council, where the (...)