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Key challenges for eHealth


Many people are already embracing the possibilities of eHealth but what is preventing eHealth from becoming a widespread reality? And what could be the potential solutions? The eHealth revolution has been a slow burner for many years but the advent of mobile and wearable technologies (from mHealth to smart watches), Big Data and the Internet of Things provide an array of new possibilities for eHealth as vast amounts of health data can in theory be (self-)generated, transmitted, stored and (...)
01/02/2016

[Joint NGO Statement] European civil society organisations call for the rejection of the EU Trade Secrets Directive


Brussels, 27 January 2016 - With regard to the upcoming vote on the proposed ’Trade Secrets Directive’ in the Legal Affairs Committee of the European Parliament (JURI) scheduled for 28 January 2016, a coalition of NGOs issued a joint statement colling for the rejection of the directive as legal uncertainty endangers access to information. EPHA joined the call as the concept of ’trade secrets’ could harm public health and can undermine public access to data on the (...)
27/01/2016

General Data Protection Regulation - EPHA progress report calls for health research exemption in trilogue negotiations


The General Data Protection Reform (GDPR) entered into the trilogue phase in June with the aim of concluding discussions at the end of 2015 or soon thereafter. A new EPHA progress report describes the challenges of the GDPR experienced so far and confirms the crucial role of data for health research and science purposes. In 2012, following the release of the European Commission’s proposal for a draft regulation (setting out a general EU framework for data protection) and a draft (...)
09/10/2015

European Parliament debate focuses on pros and cons of data driven healthcare


eHealth, mobile apps and digital medical services are sparking many hopes and concerns at the same time. The #Datacare debate held on 15 September 2015 at the European Parliament specifically explored the question, “What can data driven healthcare do for Europe?” In our globalised, digital world, things are changing rapidly and technology is an inevitable, driving feature of innovation. In the future, health systems are likely to be permeated more and more by technology. Now is (...)
09/10/2015

General Data Protection Regulation - how to reconcile ethical and business concerns?


An event organised by the CEPS on 13 May 2015 provided an update of the status quo of the General Data Protection Regulation (GDPR) and presented issues under discussion during the Trilogue negotiations. Although the principal focus lay on stimulating dialogue between regulators and SMEs/start-ups, the debate also touched upon some health-related issues such as the development of eHealth as part of the Digital Single Market, and it brought up ethical questions related to the potential uses (...)
31/05/2015

Support the European Data in Health Research Alliance!


A new European Data in Health Research Alliance was launched in early December. This campaign, supported by a number of health organisations active across Europe and representing research, patient and public health concerns, was set up to demonstrate in the most tangible way that personal data in research is vital because it saves lives. The Alliance was established by Cancer Research UK, the Medical Sciences Committee of Science Europe, European Patients’ Forum, the Federation of (...)
05/12/2014

New cancer expert group: cancer is on the EU public health agenda


On the first meeting of the new expert group on cancer, which was held on 22-23 September, the Commission presented an overview of the EU priorities for cancer and an implementation report on previous work done in the field. It gave also an update on the ongoing CANCON Joint Action (European Guide on Quality Improvement in Comprehensive Cancer Control) and progress towards a European Cancer Information System. Finally, the International Agency for Research on Cancer presented the 4th (...)
14/10/2014

[Press release] A win for transparency: EPHA calls for TTIP negotiating documents to be opened to public scrutiny


4 July, Brussels – Yesterday the European Court of Justice ruled (1) that access to documents relating to international activity would not be automatically exempt from EU transparency requirements. This decision opens the possibility for the European Commission to make public papers relating to the EU-US trade deal, the Transatlantic Trade and Investment Partnership (TTIP). EPHA welcomes the ruling and calls for the release of all TTIP documents into the public sphere and for the (...)
04/07/2014

[EPHA response] Public consultation on patient safety and quality of care


In December 2013, the European Commission launched a public consultation on patient safety and quality of care in the EU, which ran until the end of February 2014. As Europe’s leading NGO advocating for better health, EPHA contributed to this consultation and provided the Commission with the online questionnaire and a letter. The consultation was aimed at seeking the opinion of civil society on: Whether patient safety measures included in the Recommendation 2009 have been (...)
27/03/2014

[Update] General Data Protection Regulation


The European Commission introduced its proposal for a revision of the data protection regulations of the EU two years ago, yet despite agreement on a compromise text by the European Parliament in October 2013, completion of a finalised General Data Protection Regulation (GDPR) has now been delayed until after the May elections. An agreement reached on 22 January between EU Justice Commissioner, Vivian Reding, and representatives of the Greek and incoming Italian Presidency, has set the new (...)
24/01/2014