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A new European Data in Health Research Alliance was launched in early December. This campaign, supported by a number of health organisations active across Europe and representing research, patient and public health concerns, was set up to demonstrate in the most tangible way that personal data in research is vital because it saves lives.
The Alliance was established by Cancer Research UK, the Medical Sciences Committee of Science Europe, European Patients’ Forum, the Federation of (...)
On the first meeting of the new expert group on cancer, which was held on 22-23 September, the Commission presented an overview of the EU priorities for cancer and an implementation report on previous work done in the field. It gave also an update on the ongoing CANCON Joint Action (European Guide on Quality Improvement in Comprehensive Cancer Control) and progress towards a European Cancer Information System. Finally, the International Agency for Research on Cancer presented the 4th (...)
4 July, Brussels – Yesterday the European Court of Justice ruled (1) that access to documents relating to international activity would not be automatically exempt from EU transparency requirements. This decision opens the possibility for the European Commission to make public papers relating to the EU-US trade deal, the Transatlantic Trade and Investment Partnership (TTIP).
EPHA welcomes the ruling and calls for the release of all TTIP documents into the public sphere and for the (...)
In December 2013, the European Commission launched a public consultation on patient safety and quality of care in the EU, which ran until the end of February 2014. As Europe’s leading NGO advocating for better health, EPHA contributed to this consultation and provided the Commission with the online questionnaire and a letter.
The consultation was aimed at seeking the opinion of civil society on:
Whether patient safety measures included in the Recommendation 2009 have been (...)
The European Commission introduced its proposal for a revision of the data protection regulations of the EU two years ago, yet despite agreement on a compromise text by the European Parliament in October 2013, completion of a finalised General Data Protection Regulation (GDPR) has now been delayed until after the May elections.
An agreement reached on 22 January between EU Justice Commissioner, Vivian Reding, and representatives of the Greek and incoming Italian Presidency, has set the new (...)
In late October, EPHA attended a Transatlantic Consumer Dialogue’s (TACD) event intended to debate the prospective Transatlantic Trade and Investment Partnership (TTIP) between the EU and US and whether and how it is to benefit the consumers on both sides of the Atlantic. The event brought up a number of crucial considerations to be looked into what relate to public health issues. In a nutshell, this seminar stressed that the TTIP is mostly a drive towards de-regulation and a (...)
food, diet and nutrition
Trade and Health
Access to Medicines
Addictive and harmful substances and behaviours
Originally scheduled to take place in April, the European Parliament’s Committee on Civil Liberties, Justice and Home Affairs (LIBE) is now set to vote on the General Data Protection Regulation in October. This article provides a brief update on the events which have hindered the file’s progress and the current state of legislative deliberation.
Progress to date
Following the publication of the European Commission’s proposals to revise and update the EU’s data (...)
Below is an updated version of the EPHA briefing on cyber security and health technologies, first published in September 2012, taking account of developments and further EPHA work since then.
As noted in the EPHA briefing on data protection reform, the immediate problem presented by these technologies is the threat to privacy and the protection of personal information. However, the security risk presented – be it through malfunction or deliberate attack – is less widely (...)
Antimicrobial Resistance (AMR)
Antimicrobial Resistance (AMR) – EP report - EU-wide plan to tackle the proliferation of AMR
Antimicrobial resistance (AMR) has been described as one of the biggest threats to public health - a worrisome development since resistance to drugs designed to treat severe diseases is becoming more widespread. In 2001 the WHO published its Global Strategy for Containment of Antimicrobial Resistance, describing what AMR is and what strategies should be (...)
The European Parliament’s Legal Affairs Committee (JURI) adopted on 19 March its opinion on the General Data Protection Regulation. This will now be forwarded to the responsible Civil Liberties (LIBE) Committee for consideration alongside the submitted amendments.
The opinion broadly supports the Commission text, supporting the use of a regulation rather than a directive, a broad definition of personal data, and the requirement for explicit consent in order for processing to be (...)