2nd Pan-European Conference on Haemoglobinopathies

The conclusion of the 2nd Pan-European Conference on Haemoglobinopathies, held on 13–14 March 2010 in Berlin, was that closer collaboration between medical and patient communities, as well as national and EU-level decision-makers, is needed to improve the healthcare and other services for patients with haemoglobin disorders across Europe.

Five hundred patients, parents, doctors and other stakeholders from 34 countries, including 19 EU member states, gathered in Berlin for the conference, held under the theme “Patients and health professionals together for optimal care”. It was organised by EPHA member Thalassaemia International Federation in partnership with Charité-Universitätsmedizin Berlin, and supported by the European Commission in the framework of its Health Programme.

The focus was on educating both doctors and patients on the latest medical advances, but also on empowering patients living with haemoglobin disorders to establish networks and get actively involved in the shaping of health services.

A comprehensive report of the outcomes and recommendations of the conference will be disseminated to the national health authorities of all European countries affected by haemoglobin disorders, as well as other key stakeholders such as the European institutions, WHO, national and international NGOs, medical and patient communities.

For more information:

 Dr Androulla Eleftheriou
 Executive Director
 Thalassaemia International Federation
 Tel: +357 22 319 129
 Email: thalassaemia@cytanet.com.cy
 www.thalassaemia.org.cy

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